The last week has been much easier since I stopped writing a post every day (you can read why I made this decision here). Suddenly I had time to do some exercise, head outside for a scooter ‘walk’ and yesterday we went to Galway to collect my new glasses. Everything happened with much less pressure, a life suitable for someone with a chronic illness.

Writing an abstract

During the week I finalised an abstract for the ECTRIMS conference in October. This is a European conference all about Multiple Sclerosis. As the trial I am working on (you can learn more about it here)…


On the 24th April I decided to embark on a massive challenge, to write a blog post every day for 100 days. Over the last 23 days I have written 21 posts, missing two days. One of which was yesterday. I have really enjoyed the process of having to write, share the content, and then respond to any reactions to my posts. It has been a positive experience.

You will notice I am using the past tense. Unfortunately, I have had to make a decision. This is part of life, any life. We all try to do what is best…


The last week has been very busy for me. I have had three trips to Galway and I am up against deadlines on a few projects. So I have had to be very careful about pacing, which I am succeeding in, mainly. Yesterday, I decided to write a very short post, so I would not push myself over a point of no return. The skill of learning when to say “No” should be taught in schools, as I have had difficulty with this concept over the years. Now I have little choice, so I have taught myself. …


Medical appointments are a continuous part of living with chronic illness. Yesterday I had to visit the optician about getting new glasses. Usually it is a 30–45 minute visit. First the usual testing of my eyesight, then a scan of the back of my eye and then deciding on a pair of glasses, or in my case two pairs. This is just the appointment. However, i spent nearly three hours at the appointment, due to some delays.

This delay had a massive impact on me. Although I look fit and healthy, able to hold a normal conversation, I live with…


Today I will be getting my eyes checked, as I wear glasses. If I remember correctly, I was about 14 when I started to need them. The writing on the blackboard at school was getting very fuzzy. Now I am 52 I need to take off my glasses to read, age does creep up on you. However, since my accident I have photophobia. This means light causes pain in my eyes. To help this I have several pairs of glasses to suit different circumstances. ( I tried some great over-glasses which help me too)

I have dark sunglasses, with a…


This morning I received a message from a friend of mine, who happens to be a disabled driver too, to let me know about the Disability Toll Exemption Schem e for drivers of exempted vehicles in Ireland. This became available in February 2020 and it replaced a very cumbersome scheme where you had to apply to get a special card from one of the many Toll Road operators in Ireland. It involved scanning tax certificates, vehicle registration certificates and possibly a photo too. Now it is a simple online application. Super!!

It isn’t super

But it is not super in all ways. At…


A heard of wildebeest was thundering over my head. Luckily I had found shelter under an overhanging rock. Looking around, I saw a few small bones, some scratched lines on the wall, and knew I was not the first to escape under this stone. The smell of these animals was surrounding me and I wondered would they ever stop, but I was feeling so tired, I suppose the adrenaline rush of escaping had overwhelmed me. I just needed to sleep.

But this is all wrong, I felt in my slumber. How could I have been in this place, when I…


More than 50% of people living with Multiple Sclerosis will have some cognitive problems in their life. Because I live with chronic pain, Persistent Post Traumatic Headaches, and fatigue, I also have cognitive problems. This impacts me in many ways, forgetting things, short term memory issues, word finding problems and holding conversations. As these symptoms worsen, I have incorporated a few extra steps to my routines to help myself. They are:

1 — Pacing

Fatigue worsens every symptom, and it has a big impact on cognitive ability. To help soften this I make sure I pace myself, doing only what I can, not…


Cold, the cold was attacking my right leg. It was if I had stepped into a deep freeze, and this normally active leg was freezing up. It’s movement slowed, making every step an effort. The muscles of my back were screaming in pain. I could not understand why my back was sore, when it was my leg which had the problem.

Four months earlier I had felt my first symptoms. Numb heels at fort and this disappeared. It happened again, but this time the numbness travelled firth up my leg. The feel was like I was walking using sticks, not…

Having lived with chronic illness for more than a quarter of a century I am now sharing my experiences. I post on www.a30minutelife.com, Facebook and Twitter

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